I should be more mindful of my language on the public forum, even though I’m feeling frustrated, exasperated, enraged, maddened, aggravated, bothered, perturbed, discouraged, annoyed, irritated, agitated, and so on. In fact, I’m starting my third Prednisone and Leviquin regimen in five months.
I detest these two drugs because they make my body feel like all my body fluids have been depleted at the last aid station. Prednisone, which I jokingly call “pregnant zone,” causes me to gain weight like I’m pregnant, and I can’t do anything about it! I try my best to manage these issues, but getting out of bed is excruciating because that damn Leviquin makes me feel worse than when I ran 77 miles of the Superior Hiking Trail.
On a positive note, I don’t have the blisters; it’s just the body pain.
I haven’t even delved into the “Why me” phase of this ongoing battle, which has been going on for five years now. I often find myself asking, “Why not me?” considering my insurance coverage, a stable job, my age of 51, and the near independence of my child. I have the time and energy (well, not really anymore) to endure this fight. Additionally, I have other dear friends who are far less fortunate than I am. Just today, I read the CaringBridge post of a friend who doesn’t even have the options I have and will miss her youngest child’s high school graduation. So, why me? I often find myself questioning why them.
In summary, this will be my 11th Prednisone round and 4th Leviquin round since 2009, which is beyond the IV push I had during my surgery. If this treatment doesn’t work, surgery will be necessary again. This time, it’s exploratory surgery since my blood counts are normal, but I’m plagued by constant recurring infections. These infections prevent me from sleeping unless I sit up, disrupt my vision, and cause severe headaches with a pain level I’ve never experienced before. My chest is congested, and my wheezing is unbearable. I’m not sure how people manage to cope with me. I try to remain cheerful and accommodating, but I’m feeling increasingly exhausted.
I was taking pictures a few weeks ago. It was at the Ice Cave on the north-facing shore of Lake Superior. Pictures help bring the mind off other things. Here are a few photos:
Music soothes the soul. My music taste is diverse now, with many new favorites you may not have heard. My son introduced me to Amos Lee and Rodrigo y Gabriela. I enjoy Bella Ruse, Robert Earl Keen, Danny Gatton, Ry Cooder, Steel Magnolia, Marcia Ball, Mallory Hope, and others. I still love the local scene with Mick Sterling, Pamela McNeil, and the Home Free Boys.
Music is an excellent medicine for the soul. It can evoke laughter, tears, speed, or smiles. Like food, some music makes me feel better, while others don’t.
I’ve traveled many roads and often wonder if different choices would have avoided my current issues. The human body is a complex system of living organisms that interact and support each other. I’m unsure if the next round of medicine will work or if I should accept my body’s limitations. I’m exhausted.
I always loved a quote from Julius Caesar:
"If a man were to know the end of this day's business, there it comes. Will this day end, and the end be known? If we meet again, we will smile; if not, this parting was well made."
While I’ve long yearned to rejoin my trail friends on the trails, I’m still uncertain if I’ll be able to make it again. I have no regrets; I’m grateful for the journey we’ve shared. I hope to join you once more, but my optimism is waning for now. I’m not a quitter, but this situation is testing my patience!





